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CT senator’s federal bill could improve end-of-life planning

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Wednesday, August 21, 2024   

A new bipartisan federal bill could improve end-of-life care planning.

The Compassionate Care Act creates guidelines for advanced care and end-of-life planning to make the services more widely known. It comes as people are still reeling from seeing family member's experiences during the pandemic.

Sen. Richard Blumenthal, D-Conn., the bill's sponsor, said the pandemic demonstrated the importance of having a person's health care wishes spelled out.

"As much as people may be reluctant or averse to facing the need for an advanced directive or a living will, once that time arrives they are so much better for it because it's their wishes," Blumenthal explained.

A University of Michigan survey found 46% of older adults completed at least one advanced care plan. Feedback about the bill has been positive but Blumenthal noted misconceptions about it could obstruct its passage. He is concerned the bill could be misinterpreted as requiring patients to complete a living will. While the bill has been recently introduced in Congress, the busy election season might delay its passage.

The bill also calls for studying the efficacy of a national advanced care planning registry so patients can transfer advanced directives from state to state. Another provision of the bill is expanding telehealth services for hospice patients.

Kim Callinan, president and CEO of Compassion & Choices, said such services are essential since people at the end of their lives may not have the strength to visit an in-person doctor.

"To be able to access more care at the end of life via telehealth instead of having to do more in-person visits that rob people of precious quality of life can profoundly impact how one dies," Callinan pointed out.

Beyond federal bills, Callinan added state legislation like Physician Orders of Life-Sustaining Treatment bills bolster end-of-life care. They are portable medical orders letting health care facilities know a patient's wishes for end-of-life care and emergency medical services. Currently, 42 states and Washington, D.C. have enacted similar bills.

Disclosure: Compassion & Choices contributes to our fund for reporting on Civic Engagement, Health Issues, Senior Issues, and Social Justice. If you would like to help support news in the public interest, click here.


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