Saturday is National Health Care Decisions Day, a reminder Utahns and others should have plans in place in case they need medical attention and are unable to state their wishes.

Kim Callinan, president and CEO of Compassion & Choices, which advocates for medical aid in dying for people with terminal illnesses, said medical directives for end-of-life care are not only important for the person, but for their family.

"One in two seniors now die with or from dementia, and unfortunately, most are not planning for what the end might look like," Callinan pointed out. "Without planning, you're leaving your loved ones and caregivers having to make just heart-wrenching decisions."

Recent polling showed a majority of Utahns support legislation to legalize medical aid in dying, but state lawmakers rejected the measure once again this year. Its backers say there was good support for the measure until 2016, when leaders of the Latter-day Saints church urged their members to oppose the practice.

Utah is among the top 10 states for Alzheimer's deaths, and of the estimated 6.2 million Americans over age 65 with Alzheimer's disease, more than half are women. Women also are more likely to have other forms of dementia.

Callinan noted advances in medicine have prolonged life for many people, but in some cases, it can also lead to years of suffering.

"With planning, you're able to disrupt the system and have a much more compassionate end," Callinan explained. "Without planning, you're subjected to a health care system that is going to focus on prolonging life, which in the case of someone with advanced dementia, often prolongs suffering."

Callinan acknowledged it is not easy to have such conversations with loved ones, but there are resources available to help.

"For National Health Care Decisions Day, I would encourage everyone to have conversations with their loved ones about the care that you would want at the end of life," Callinan urged. "And in particular, use our Dementia Values and Priorities Tool, so that you can document your care preferences to safeguard your future."

Advocates for unpaid family caregivers in Maine say they'll need continued support beyond the recently passed paid family and medical leave program.

Caregiving can be a full-time job with many out-of-pocket expenses, like paying for gas to get to a doctor's appointment or ensuring a parent has enough food in their fridge.

Bridget Quinn, associate state director for advocacy and outreach with AARP Maine, said state grants to help caregivers with up to $5,000 in expenses will end next year, and lawmakers need to start considering ways to ensure that help continues.

As Quinn put it, "That is basically having a 24-7 job for a lot people that they never get a break from, so there is a significant amount of caregiver stress and burden."

An AARP report finds unpaid caregivers in Maine provide nearly $3 billion in economic benefits, with women providing the bulk of that work.

Beginning in 2026, eligible workers will have 12 weeks of paid time off available to them for family or medical reasons. Employers and employees will split a 1% payroll tax to fund the program.

Quinn suggested the Maine Legislature could also create unique tax credits for caregivers, to help cover expenses and increase the availability of services that allow families to remain in their homes as they age.

"Especially for those in kind-of far out reaches of Maine," Quinn added, "who really need the support sooner than later, because they are dealing with a situation where they have few options already."

She noted it took years of grassroots advocacy to win a paid family and medical leave program, and encouraged caregivers to reach out to legislators to ensure more gains.

Many older residents of Washington state are facing strains on their budgets -- and the government programs that could assist them are underused. An assistance program like the Senior Property Tax Exemption is a prime example.

King County Assessor John Wilson cited the median value for a home in his county as about $790,000. If someone qualifies for a full exemption, Wilson estimates they would save almost $5,000 a year.

"$5,000 a year savings in property taxes is nothing to to be trifled with," said Wilson, "but the shame of it is, a lot of folks don't know that program even exists."

The Washington Legislature has expanded the Senior Property Tax Exemption program by increasing the economic threshold, he added. In 2024, his office estimates as many as 30,000 more people will apply for the program.

Other programs can also help. The state's charity care law directs hospitals to provide financial assistance to low-income patients. The Affordable Connectivity Program helps people get a discount on their broadband internet service.

And bigger federal programs, like the Supplemental Nutrition Assistance Program (SNAP), provide crucial assistance, but only about 64% of eligible older Washingtonians use it.

Wilson is convinced there's an unnecessary stigma surrounding assistance.

"I know from talking to seniors, what you hear sometimes is, 'Well, yeah, but I just feel kind of awkward asking for it,'" he recounted. "Or they feel like it is some kind of tacit admission that, 'I've failed somehow.'"

Wilson believes government at various levels needs do a better job of raising awareness for these programs, too.

"There are so many economic pressures that are weighing on people now," he noted, "and there is a safety net out there, but we don't do always a really good job of showing people, 'Here's how you can access it -- and here, by the way, are the various things you're eligible for.'"

Online tools can also help people find the programs they're eligible for, such as Benefitscheckup.org from the National Council on Aging.



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As of Jan. 1, insulin will become a lot more affordable for many Nebraskans, and those who have come to rely on telehealth visits are more likely to be able to continue receiving care this way.

The state senators who helped bring about these changes have received 2023 AARP "Champion Awards."

Sen. Eliot Bostar, D-Lincoln, was named a "Champion for Prescription Drug Affordability." His bill led to an out-of-pocket price cap of $35 for Tier 1 insulin.

Jina Ragland, associate state director of advocacy and outreach for AARP Nebraska, said it could make a big difference for people, some of whom might not have been able to take their medications as prescribed.

"They're rationing medications because they can't afford them, and they're trying to pay for groceries or utility bills or whatever," Ragland observed. "Which, for diabetes and insulin-dependent individuals, can be deadly."

Sen. Tom Brewer, R-Gordon, received a "Champion for Family Caregivers" award for his legislation to help ensure access to telehealth services. It requires insurance companies to pay in-state providers at least as much for telehealth visits as for in-person visits.

Ragland pointed out telehealth can make a huge difference, especially for those in rural parts of the state. She noted the telehealth option can spare some Nebraskans many hours of driving to appointments.

"How many people have a loved one that's an older parent that may have to take off a full day of work to drive from rural Nebraska," Ragland stressed. "Either into Grand Island, Lincoln, Omaha - or if they're going the other way, even into Denver or parts of Wyoming?"

Ragland expects telehealth will continue to grow in popularity, and believes it will help with the workforce shortage at Nebraska's rural clinics and hospitals.

"As people become more and more comfortable and have the connectivity, they're able to utilize this service," Ragland emphasized. "I think even for the provider side, it saves a lot of time for them, also, in meeting the needs of more people, I think, in a more time-efficient and effective model."

She added telehealth can contribute greatly to a person's ability to remain as independent as possible while "aging in place."